Legwork and Life, week of 6/6/18

I feel kind of off this week.  Maybe it\’s the fact that my legs constantly feel like they\’re on the verge of getting pins and needles.  Maybe it\’s that I had a really exhausting Monday. 

I went to bed on Monday night, very stressed and upset from the day I\’d had.  It was one of those \”I can\’t possibly meet these deadlines\” kind of days, where you beat yourself into trying to meet them anyway.  Then your boss comes and yells at you for not doing something perfectly while you\’re struggling along, and you just kind of feel awful.  (The actual situation is a bit too complex to describe properly here, so I\’m giving an equivalent instead.)   When I finished for the night and went to bed, I noticed that one of my arms and both legs felt kind of like they were just about to fall asleep on me.  I guess kind of fuzzy?  But not a nice comfortable fuzzy, an uncomfortable \”you\’re going to have pins and needles soon\” feeling.

This was kind of uncomfortable for trying to fall asleep with, so I kept shifting my legs, but the weird feeling didn\’t go away.  Eventually I slept… and woke up with the legs still acting like that.  I felt a little clumsier overall yesterday, but went biking as usual and my muscles performed fine… but later that day I talked to a friend of mine and he seemed worried by my description, which alarmed me more than I was already.

So I ended up calling the chiropractor.  They didn\’t like the sound of what I described, and had me come in the same day to make sure I was okay.  Apparently my spine felt like being tetchy and rebelling against the the chiropractic work I\’d had done on Monday, so they did another adjustment to hopefully put it back in line and make my legs stop feeling weird and gross.  But then I had to ice my back for a half hour, because vertebrae get less and less graceful about handling chiropractic adjustments the quicker you do them. Inflammation tends to result.  So, ice pack… or to be more precise, big bag of frozen peas.  I\’m to keep an eye on the numbness situation, and if it\’s not better by this Monday, check in there again. 

In happier news, my old hairstylist-person is back in town!  I complained about her leaving several months ago, after she graduated her school and went off to pursue her dream job in Chicago.  This was in part because I hate change, and in part because I had gotten very fond of her and she\’s a very remarkable person.  She went off, though, and was gone for several months.  I\’m… not really sure what specifically happened to bring her back here, but I couldn\’t manage to handle travel plans to visit her in Chicago, and I guess now I don\’t have to.  I suspect it\’s not a happy story, so this is not entirely happy news, but I\’ll be seeing her tomorrow for coffee and will be able to celebrate and/or commiserate with her.

This actually also brought up the awkward question as to what to do about my hair maintenance now.  She\’s still working, and still in the hair-beauty business, but while I\’m happy to support her and be a customer to her new place, I also don\’t want to just… disappear on the student I\’ve been having work on me since she left.  Fortunately, this problem has a time limit on it.  The student graduates in August, and is going back home to find a job.  Her home is over an hour away from where I live.  That is a very long way to drive when the process of making my hair blue takes 4+ hours.  So probably when the student\’s graduation happens, I\’ll simply bid her farewell and wish her luck, but not make plans to show up at her new workplace.  I feel kind of bad about it, but that\’s a lot of gas and time, and she personally knows that all too well. 

Lastly, thanks to a friend, I ran across a helpful website I\’d forgotten about.  It\’s called myNoise, and it lets you listen to all kinds of sounds, from plain white noise to rain under a tent to a sailboat creaking in the waves while a thunderstorm rolls around you.  When I was in college, I ran across a very simple app for a web browser that did something like this, but only had six options.  I think it was around finals time, and I was so stressed that simply turning on the rain noise was a wonderful relief, like plunging a burning hand into a bucket of water.  They had a donation button, and the donation limit was $2.  I think I threw like 10 bucks at them (I donated 5 times) before I finished calming down from my fit of gratitude.

This site is a great deal more complicated, as you can kind of tell from the lengthiness of that last noise generator.  I\’ll probably donate to this website as well, now that I\’ve downloaded the app on my tablet and will be able to bring the sound of the ocean, rain, and chimes with me wherever I go.  The app seems more limited, and most of the generators are locked behind in-app purchases, but you can buy them all for $12, so I\’ll probably do that.  Part of being an adult is recognizing that other people have to eat and pay rent also.  If you love something, you have to support it, or it might not be there any more someday.

Now if you\’ll excuse me, I\’m going to go flop in bed and listen to the magical invisible rain that will never get me soaking wet, and give my anxiety disorder a pass for a few minutes. 

Reading the Research: Transgender Brains

Welcome back to Reading the Research, where I trawl the Internet to find noteworthy research on autism and related subjects, then discuss it in brief with bits from my own life, research, and observations.

Today\’s article explains the existence of trans people a bit better.  (Because a large percentage of autistic people, including myself, fall into the category of \”gender nonconforming,\” this piece of research strikes me as rather important.)  Transgender people, most commonly, are people whose physical bodies don\’t match their gender identities.  So, a person born with ovaries and breasts (born with female sex parts) might feel, deeply, that they are a male person.  Their masculinity is a major part of their identity as a person, despite their biological parts.

This is a very uncomfortable place to be, and can cause severe distress, known as \”gender dysphoria.\”  From the article: \”Although GD (gender dysphoria) is rare, gender identity is an essential part of psychological health, and if unaddressed can lead to serious psychological issues.\”  Gender dysphoria is usually helped along by people who don\’t believe that it\’s possible to have a parts-brain mismatch, and insist that whatever parts you were born with, that\’s who you are and you should just deal with it.  Well, as it turns out, it\’s not that simple. 

Scientists in Europe did brain scans on teenagers who reported suffering gender dysphoria (as well as a control group of non-dysphoric teenagers).  The teenagers were exposed to stimuli and psychological tests that cause different reactions in typical male and female brains, and their brains\’ reactions were tracked with the scans.  The results?  The trans teenagers\’ brains tended to act like their preferred gender-identity\’s typical brain.  Apparently, the brain trumps external genitalia when it comes to gender identity. 

It is not yet known how soon in a child\’s life these brain differences become apparent to a scan, but I personally know of a child who recognized their sex/gender difference prior to the age of 10.  So there\’s a good chance it\’s a lot younger than the teenage years.  From the article, it sounds like these scientists will continue to follow this line of research.  I\’ll be curious to see what they discover, because I am also, by some definitions, trans. 

I was born into a body possessing XX chromosomes, and my body developed nearly flawlessly in that sense.  However, I have no idea what would occur if you put my brain into the same tests these teenagers took… because I\’d personally be happiest if gender identity didn\’t ever apply to me.  I am what\’s sometimes termed \”agender.\”  I don\’t consider myself particularly male or female.  I really don\’t fit well into feminine stereotypes: I don\’t like clothes, makeup, most kinds of shopping, accessories, socializing, home-making, or cooking.  But I also don\’t really fit most male stereotypes, either. 

I am… basically, just me.  And I\’d pretty much just prefer people to just judge me by who I am, not what I look like or what parts I happen to have.  Perhaps if they put my brain into those scans, I would test as a combination of male and female, or maybe even not follow the patterns of either.  I am, after all, autistic, and that makes my brain unusual to begin with.  That being the case, it doesn\’t really surprise me that so many autistic people also identify as one or more of the letters in \”LGBTQ+.\”

Sensory Processing Difficulties: Proprioception and Vestibular Senses (Part 2)

This is part 2 of a series on Sensory Processing Difficulties.  Part 1 was on the sense of touch.  Part 3 is on sight, and part 4 is on taste and smell.

Part 2 will cover the two senses we aren\’t taught about in school: proprioception and the vestibular sense.  These two senses, while not waxed about in any kind of poetic fashion by philosophers and artists of the past, do serve very important functions.

Just FYI…

A note, which I\’ll paraphrase from part 1 and then explain a bit more:

While I\’ll talk about these senses separately, you should keep in mind that a person can\’t process these senses separately, or turn off one if it\’s being bothersome.  All people experience all these senses at once.  The only reason you\’re not regularly overwhelmed by feeling where each of your limbs are in space, while smelling the odors of your house, hearing the shrieks of the neighbor\’s children playing outside, smelling the soap you used to wash your hands, tasting the last thing you ate, and feeling both the pull of gravity and the texture of whatever you\’re sitting on… is because our brains filter out all but the most relevant details.  Sometimes this filter doesn\’t work very well, but I\’ll explain about that later.

Proprio-what?

Proprioception (such a weird word) is your sense of where your arms, legs, and body are in space, and it relies on being able to understand feedback from sensors in your joints, ligaments, and muscles.  These sensors tell you what angle your arms and legs are at, whether any force is being applied to any of those areas, and where your limbs are at any given time.  When you reach behind you to shut a door, or move yourself through a dark area, you are relying on this sense alone to not bang your arms and legs into themselves, and any objects you remember in the area.  You also rely on it to use the correct amount of force to shut a door rather than slam it or leave it ajar. 

When this sense goes amiss, a person can\’t locate their arms and legs in space without looking at them.  You could find yourself regularly sliding out of your chair rather than sitting solidly in it.  Or tripping over your own two feet as you walk or run.  You might also grab things too roughly or softly, thus either breaking them or dropping them.  Children with difficulties in this area might avoid (or crave) jumping, crashing into things, pushing, pulling, bouncing, and hanging.  An otherwise mild-mannered child that always seems to be banging into others might not be aggressive, but rather lacking proprioception\’s body awareness.

About a year ago, I reviewed a book called The Reason I Jump, by Naoki Higashida.  I didn\’t comment on the title at the time, because I didn\’t want to spoil the answer to the implied question.  But in light of this particular topic: the essay that explained this answer involved this sense.  Mr. Higashida pretty clearly suffers from lack of body awareness.  His particular description was extremely poetic and very impressive, and I still recommend you read that book.  If nothing else because it gives you another viewpoint on from the autism spectrum, and one that doesn\’t overlap a whole lot with my own experience.

Pencils, Skates, and Origami

As for me, personally?  I think maybe a lessening of this sense might explain some of my innate clumsiness.  As a child, I tended to always look down when I walked.  This was because I tended to trip over my own feet, on apparently flat surfaces.  I knew this, and knew I\’d have a better chance of placing my feet optimally if I simply looked where I was putting them.  This came with the added bonus of being able to see where to catch myself when I inevitably tripped anyway. 

As I grew, I got better at not tripping, and became more adept at catching myself before I fell.  This was in part due to taking up roller skating.  I started in the beginner\’s class, with lots of little children, but with time, effort, and many bruises, I became adept enough to skate on one foot, cross my feet over each other to do fancier tricks, and even perform simple jumps and spins.  I was eventually informed that I should be in the adult class, which helped me refine and stretch those abilities.  My instructor was a retired professional skater, whose high school daughters competed in the state competitions.  So while I would certainly never have made it into any of those competitions, I can safely say that his instruction was excellent.

Another proprioception-related task I had to learn to overcome was my fine motor clumsiness.  I think I still suffer some of that, particularly when I\’m not paying attention.  I do seem to drop things and break things a great deal more regularly than my peers… But it\’s not as bad as it used to be, I think.

As a child, I tended to hold my pencil with a death grip.  This was noticeable because my hand would tend to cramp up, but also because I held the pencil wrong.  Children are taught to hold a pen with three fingers… 

To this day, I hold mine with four.

This is, as a rule, an inferior grip to the first, as it strains your hand more.  But for someone with clumsiness issues, adding the fourth finger stabilizes the pencil and allows for more control and accuracy.  So that was how I wrote, despite teachers trying to teach me otherwise, and it\’s how I write to this day.  The end result was darker marks on the paper, with occasional tears from pressing too hard.  (This is actually also a sign of a messed up proprioception in children, by the way.)

As an adult, I tried the three-finger grip out, and can now manage it without losing too much by way of speed.  But it\’s not comfortable or how I\’m used to doing it, and since writing has become far less common, I see no need to change my habits.  I did work to overcome some of my fine motor difficulties, though… with another hobby: origami.

I\’m almost 30, so it bears pointing out that when I was learning, you couldn\’t simply pull up videos on the Internet to teach you how to make this fold and do that technique.  Instead, I had books.  These books had the words \”mountain fold\” and \”valley fold\” and \”bird base\” and all manner of other artistic-not-immediately-helpful-to-a-small-child vocabulary.

So learning was a bit of a struggle, but I\’m extremely stubborn, so after accidentally tearing, smashing, and otherwise destroying probably hundreds of squares of paper, I did actually learn the basics of the art.  Origami is an art of precision, particularly when you\’re working with specialized paper.  The closer your folds are to their destinations, and the thinner the creases, the better your final product.  This means you can manage to follow all the directions, yet still have a final product that doesn\’t look that great.  But it also means that practice really does make perfect.

I can now boast of being able to teach anyone how make a traditional Japanese crane, so long as they\’re patient and willing to put in the effort.  Also, I once pranked my second high school by scattering a thousand of these cranes, along with the wish that the place would become less of a toxic hellhole.  I kind of doubt I got my wish, but at least the prank was fun, and I really doubt they\’ve found them all unless they\’ve renovated their ceilings…

Vestibular Sense

The vestibular sense is also involved with movement, but instead of your joints, it\’s instead linked to your inner ear.  It\’s your sense of how fast you\’re going, whether you\’re accelerating, and the pull of gravity itself, which in turn affects your balance. Apparently this is registered by… what amounts to little hairs with protein crystals suspended on them, inside your inner ear.  It sounds really weird and random, but when you turn your head, the hairs move, pulling the crystals after them, and that movement is gauged by sensors inside the inner ear.

When you lean over to pick something off the ground, you\’re using your vestibular sense to counter-balance yourself so you don\’t tumble to the ground right after the object.  You also use this sense to figure out what position you\’re in, related to the pull of gravity.  After all, a standing position is relatively similar to a lying-down position… at least if you\’re in space.  With gravity, your inner ear tells you which way is down.

When this sense goes awry, all kinds of exciting and unfun things can ensue.  Your balance can go entirely out of whack.  Without the ability to sense the pull of gravity, you can over- or under-compensate for it, resulting in uncoordinated and clumsy movement, if not outright falling.  Stairs, ladders, and slides can become your worst nightmare… or your best friend, if your body craves that sensory input.  Motion sickness might be your constant companion, or you might never ever get motion sick even in circumstances that would make pretty much anyone else ill.

Most interestingly to me, apparently the vestibular sense also factors into your vision.  When a neurotypical person jumps or bounces up and down, their field of vision appears to remain relatively stable.  With a wonky vestibular sense, that is not the case.  So you can have a child perfectly able to read the blackboard or a computer screen, but not able to walk across the school room without banging into desks and classmates.  I guess, something like that accursed \”shaky cam\” technique that keeps making me miserable and confused while watching movies.

Personally, I think I mostly lucked out when it comes to this particular sense, sans the motion sickness aspect.  I don\’t particularly suffer oversensitivity to movement, and my vision complications are brain-related, not inner-ear-related.  I usually don\’t fall while leaning down to pick something up, and my sense of balance is remarkably good considering my proprioception-related limitations.

The motion sickness, though…  I don\’t recall getting very motion sick, ever, as a child.  I could even watch those enormous IMAX 3D screens in reasonable comfort (but my mom couldn\’t).  I didn\’t adore theme park rides, especially not roller coasters, but I could tolerate them.  If it got too bad, I\’d simply shut my eyes, thus eliminating the most dizzying form of sensory input, and huddle until the ride was over.  It was still uncomfortable, but not intolerable.

Now?  Now I can get motion sick from things as simple as \”riding in the back seat of a car.\”  It helps if I\’m hungry.  Something about being hungry makes it exponentially more likely I\’ll get sick on a theme park ride or a car ride.  However, that naturally makes the fix just as basic: get off the ride or out of the car, and eat something simple.  I have no idea why this works.  Even with food freshly in my stomach, though, I no longer care for IMAX 3D movies, and tend to avoid most theme park rides. 

It\’s notable that this particular sense (in conjunction with others) is also used by some autistic people for calming down.  Dr. Temple Grandin, the foremost autistic speaker, includes spinning and rolling as forms of comfort.  There\’s a clip from the HBO movie where the actor playing her explains exactly this.  I… am not like that.  I don\’t really like spinning or rolling, and get dizzy at a regular rate, if not faster than usual.  This actually made learning those skating techniques a great deal harder, as a dizzy person is more likely to fall down than a stable person.

Summary

This week I\’ve described the two \”ignored\” senses, proprioception and vestibular sense, and given you a basic idea of how they work, what it looks like when they work, and what it can look like when they don\’t work.  In addition, I\’ve given you a few examples from my own life as an autistic person as to how these specifically play out.  Next week, I\’ll get into vision, the sense almost all of us take for granted.  I have a unique brain-eyeball communication problem that makes this sense extra fun.  Should be interesting!