Autism- and Sensory-Friendly events

https://theoutline.com/post/5175/a-glimpse-into-autism-day-at-six-flags?zd=2&zi=ivnnivap

I\’ve been seeing more and more of these recently: mainstream events designed around, or directly for, people with special needs.  In my particular community, there is no nationally-branded amusement park, but both major theater groups (AMC and Celebration) offer sensory-friendly showings of various movies.  I\’ve been to one on accident: it was more or less the same as a regular showing, except the lights were on in the theater, there was a kid running up and down the stairs a lot, and it was a bit more socially acceptable to have a quiet conversation with the person next to you.

What made this particular event at Six Flags interesting to me is that they effectively closed their doors to most of the population of the US, in the name of being autism-friendly.  The amusement park did, of course, offer accommodations in various places for overstimulated children.  Most places do that.  Most places, however, don\’t bar the general public from the event.  On this one day, Six Flags did exactly that, allowing only autistic children, their families, and specially trained teachers into the park.

The article\’s author notes that the reasoning is quite valid: even one intolerant person is enough to make a whole family feel unwelcome.  Making the park only have people that have experience dealing with autism and the difficulties and differences that come with it means there\’s far less of a chance of some judgemental loudmouth asking the parents \”why they can\’t control their child,\” or some similarly thoughtless, useless remark or question.

As a non-parent, I am admittedly not an expert in this area… but it occurs to me that children are literally small humans, and it\’s not exactly possible make any human be a perfect little puppet.  Especially if they\’ve got difficulties and differences like mine.  Even if they\’re little.

Regardless, such remarks or other hurtful words and actions can really alienate autistic people and their families, so this step, while rather bold, is perhaps not unwarranted.  It\’s a single day in their year, as well, so it\’s probable the amusement park\’s profits weren\’t too severely dented.  I would be kind of curious to see a count of the attendance that day, though.  Amusement park admission isn\’t cheap, and a lot of families with autistic members don\’t have a lot by way of disposable income. From the fliers, it looks like there were sponsored admissions through at least one organization, though.

I\’m not sure what to think of these exclusive events.  While I recognize the legitimacy of keeping the general public out so that we can enjoy ourselves without worrying, I\’d hate to see it become a trend.  Exclusion negates the possibility of inclusion.  We can\’t teach neurotypical people to include us and see us as people if we exclude them from our events.

I doubt it\’ll become that widespread of a trend, though, so I\’m glad these events exist.

Legwork and Life, week of 7/4/18

Happy 4th of July.  This post will be going up at the usual time, but I will likely still be fast asleep because we had late night movie night with friends, and it went until early o\’clock.  I wouldn\’t have slept well last night anyway, due to all the noise.

Because it\’s around the 4th of July, and I live in the US, I currently live in a place where fireworks will go off at any given moment, especially if it\’s night time.  Autistic sound sensitivity, meet \”nobody cares, enjoy your frazzled nerves and general ill-will.\”  Yyyyep, that\’s right.  Just because it\’s a national holiday does not make all those explosions somehow friendly or easier to tolerate.

This is my first 4th of July in this house, and I was kind of hoping it\’d be a bit quieter than it is.  Which isn\’t to say it\’s not quieter than my old apartment was, mind.  People there thought it was acceptable to light fireworks off at, say, 3am, regardless of whether it was 2 weeks after the 4th, or before it.  Even knowing many of my neighbors were immigrants and thus at a lot higher of risk if the cops were involved, I almost called law enforcement several times.  I never quite got to that point, but I was mad enough to scream out the window several times.

You are now perhaps wondering how I manage July 4th at all, and whether I attend fireworks shows or do events at all, considering what I\’ve described.  The answer to the first is \”poorly.\”  When explosions can happen at any time, with no warning, I find myself a lot more rattled, anxious, and distractable.  I mostly survive this time of year.  The answer to the second is \”yes, with proper motivation.\”  Fireworks shows aren\’t just about the fireworks, they\’re also about spending time with people.  I do find fireworks pretty, and I approve of their use of gunpowder over the more standard ammunition and guns.  I can prepare myself somewhat to be bombarded with the sounds, bring ear plugs, and clamp my hands over the earplug-wearing ears to further dampen the sound.

This year my friends are busy, so I\’ll miss the fireworks show downtown.  I\’m not sure whether I\’m sad or relieved.  It would be fun to spend that time with them, but my nerves are already pretty frayed.  It\’s been a pretty crummy last few days for me.  In addition to the fireplace gunk I mentioned last week, I think something molded in the house and my throat\’s been sore and scratchy for weeks.   I\’ve been unable to help my grandmother get her stereo system (multi-CD player) working properly, despite putting literal hours into it at this point.  I ran out of some of my supplements, had major gastointestinal issues, and the house appears to have developed an infestation of tiny bugs.  They seem to be attracted to the tub, kitchen counters, and bathroom counters, whereupon they die, en masse.  All neatly and evenly spaced.  It\’s both bizarre and disgusting.

The last thing to mention is that I\’m getting a bit disheartened with my 5 day/week exercise routine and fasting diet.  The latter makes the 3 days of biking kind of unpleasant, because I don\’t eat until noon, but with it being hot out, I need to bike before noon.  This would be fine, but I\’m also still not losing weight, and I have a limited amount of patience for things that degrade my enjoyment of life with no positive effects to show.  I\’ll perhaps talk to my doctor about upping my \”eating time\” to 10 hours instead of 8, and starting to eat at 10am instead of noon.  I might be able to have breakfast 2 biking days out of 3, if that happened.  

Reading the Research: Out of Sync

Welcome back to Reading the Research, where I trawl the Internet to find noteworthy research on autism and related subjects, then discuss it in brief with bits from my own life, research, and observations.

Today\’s article notes a tendency I figured was just off about me, but is actually widespread in the population.  Apparently sight and sound are not processed instantaneously by most people, even neurotypical ones.  And it\’s not even a predictable delay in processing, either, it literally varies by the person.  I\’d always kind of assumed that neurotypical people saw the world like they see movies: sight and sound processed together, in perfect sync.  The fact that I didn\’t have that perfect comprehension was just one more thing wrong with me.

But apparently not.  Apparently, I\’m in good company with… approximately everybody.  Though some people do manage to overcome this complicating factor and learn to lip read anyway.  I\’ve never managed that particular skill, perhaps due to my particular version of poor visual processing.  I would guess I probably have a much longer delay than most, or I wouldn\’t have scored in the lowest 5% of people tested in visual processing…

The article talks about improvements to hearing aids and cochlear implants, or computer media players.  Setting an individual delay could improve a person\’s experience with watching a movie, for example.  Personally, I think I see why I like having subtitles so much, regardless of whether I\’m watching a foreign movie or a domestic one.  Because I read very swiftly, having the subtitles allows me to double-check what my ears hear, sometimes even repeatedly.  They also allow me to catch little side-conversations that aren\’t otherwise even audible to me, which means catching extra jokes and additional information I might not otherwise have.

I know subtitles aren\’t ideal for everyone, but I kind of want them to be included in every movie from now on, now that I know other people also suffer from a lesser version of what I do.  And can you imagine?  The deaf/Deaf community would get to enjoy so many more movies that way.  I regularly pick up a subtitles display machine when I see movies, even though I am not deaf in any way.  There\’s always like 12 of those machines, but I\’m the only one using them with any regularity.  To be fair, they\’re not the most reliable pieces of machinery I\’ve ever seen.  It\’d be so great if the experience was mainstreamed.  More people would get the little easter eggs slipped into the side conversations, and the movie experience would be more inclusive overall.

It\’d be better for many autistic people, too.  Apparently some autistic people gravitate towards Japanese cartoons (anime) for various reasons.  Such cartoons often come to us in Japanese with English subtitles, which well-accustoms a person to using such subtitles even if they do speak Japanese or understand it at the fluency level.  Having that extra information enhances my experience, even if it no longer teaches me what triumphant music sounds like, or what someone thinks an embarrassed laugh sounds like and what context it\’s done in.

All in all, this is a cool little study that has interesting implications for the future of both subtitles and hearing aids.