Legwork and Life, week of 1/9/19

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from 2019, where I am still not quite back to my usual schedule.  At this point in the week, I think the only thing I can fairly blame is Games Done Quick, which is a charity event that\’s been going since Sunday.  Essentially, a bunch of highly skilled people speedrun games (play games as quickly and efficiently as possible) to entertain people and raise money for a charity.  


This winter event always supports Prevent Cancer, which aims to do what its name says.  Being suspicious and terrible, I looked into the organization, and they\’re very good as charities go.  So that\’s pretty cool, particularly since, as of now, the event has raised nearly half a million dollars.  I imagine it\’ll probably double by the end of the week, but as I\’ve never actually watched one of these until this year, I\’ve no idea.  

As a a child, I was wholesale banned from playing console video games, and severely limited in my usage of the computer.  This kept me from being socialized in the growing culture of video games, and also limited the development of my hand-eye coordination.  As a result, I\’m not very good at most video games, and have played far fewer of them than most people my age.  

Whether this was a good choice on my parents\’ part or not is debatable, and I won\’t go into it here.  Instead, I\’ll note that watching this charity event, with video games being played and completed in anywhere from 7 minutes to an hour, means I get to see a whole lot of different kinds of games in a very short time.  Certainly, I don\’t get to see the stories- one of the most basic strategies of speedrunning is \”skip the dialogue as fast as you possibly can\”- but I do get to see the gameplay.  It\’s interesting to see all the visual tricks and virtual camerawork that goes into things as simple as platformers (where the main aim in the game is to move your avatar from floating platform to floating platform, without falling and dying).  

So essentially, it\’s kind of like getting a very brief education on every game I watch.  It lets me earmark games I\’d like to see in more detail, which includes most of the story-based ones.  Because I\’m still not very good at video games, I\’ll probably watch most of them in Let\’s Play, rather than buying and attempting to play the game myself.  

It\’s also really cool to see the communities that have formed up around all these video games.  As the players play their video games for charity, people from the audience cheer their successes and groan at their accidental failures.  Donations come in for the event with messages attached.  Some of the messages talk about family or friends fighting cancer, or lost to cancer, but some are simply to cheer on the particular player while they\’re on camera.  In some cases, a whole group in the same community as the player will chip in together for a sizable donation, which tends to bring a smile to the player\’s face, even as they continue to focus on the game.  

Finally, Games Done Quick seems to have put serious effort into being as accepting as possible.  While the event is held in English, there are players and attendees from all over the world.  Darker skin is no bar to this event.  Neither are disabilities, it seems- one of the official staff, an interviewer, was a Little Person (dwarf, midget, choose the least offensive term here).  There have been runners and commentators that are clearly trans.  Their chosen pronouns have been respected.  You can also routinely hear warnings for people with epilepsy, as certain parts of some video games can trigger seizures.  

Unsaid prior to now, but meriting comment, is that many of the players and attendees are likely on the autism spectrum.  Nobody would walk around saying, \”Hey, are you autistic?  What about you?  And you?\” at an event like this, but at one point as a game was starting, there was some microphone feedback, and you could see some people were more pained by the resulting high-pitched shrieking than others.  Sensory sensitivity is not a direct indicator of autism, but people with autism often also have sensory sensitivities… and video games tend to attract autistic people as well.

Beyond my virtual attendance of Games Done Quick, everything\’s settling back to normal, save some scattered doctor\’s appointments.  I\’m hoping those won\’t be too expensive, but we\’ll see.  Going to try to get allergy tests, have my only wisdom tooth removed, and get a pair of weird skin lumps killed off at a dermatologist.  The lattermost probably won\’t be anything interesting (like, y\’know, cancer), but they are annoying, so best to kill them just in case.  

Taking Stock of Things, 2018

Happy New Year!

I think this Taking Stock of Things is going to be a yearly piece, at this rate.  This entry covers who I am, why I feel like I\’m qualified to write this blog, and what I hope to accomplish by doing so.  Previous years\’ Taking Stock of Things are here and here.

2018 was kind of a challenging year, between moving into the new house, doing two rounds of government work, and juggling my therapy, marriage, and dietary requirements.  Still, I seem to have survived.  So, once more:

Hi, I\’m Sarah: Aspie, artist, advocate, and perhaps most of all, aspirant. I aspire to improve myself, my situation, and (if I can) the small piece of the world I can touch. I\’m a fairly self-aware person for a person on the autism spectrum, and it\’s my goal in life to understand people and help people understand.  

It seems like a lot of people don\’t understand autism, and that leads to confusion, dismay, and frustration on all sides.  This blog is my answer to that disharmony: a chance to share perspective and ideas with people on and off the spectrum.

Quick Facts

  • A/S/L: 30 years old (Oh no, my lost youth!).  Biologically female, identifies as agender. Resident of Michigan (US).
  • Education: Graduated high school, then college, earning a BA in psychology, with a minor in information systems (business crossed with computer science).
  • Marital Status: Married for 2 years to my spouse, Chris, who still hasn\’t run out of patience with my weirdness.  Props to him.  
  • Residence: After years of renting apartments, now living in a 2 bedroom condominium (bought early last year).  The condo dues cover external care (roof, siding, lawn, snow), but internal care (carpet, walls, appliances, possessions) is our responsibility.  Since neither of us likes or is good at yard work, this suits us very well.
  • Transport: Still driving myself around in a minivan, which is all paid off as of this year, yay!
  • Diagnoses: Acquired at age 20: autism, dysthymia (low grade, long lasting depression), generalized anxiety disorder (everything makes me anxious), supremely terrible visual processing, and mild-to-moderate light, sound, and touch sensitivities.
  • Employment: Thoroughly self-employed: doing everything from pet-sitting to autism consulting.  Contact me if you\’re interested in having me speak on autism or related subjects!  Also planning on volunteering more at Autism Support of Kent County this year.
  • Dietary Weirdnesses: Low dairy (ideally, no dairy).  Conditionally vegetarian (the meat industry is horrifying), but making more allowances for local farms these days since they\’re not part of the problem.  I also need to be cutting down on sugar, because it wrecks my colon pretty good.  It\’s just so tasty and hard to avoid.

Therapy List

  • LENS (low energy neurofeedback system)- a type of passive neurofeedback.  The theory is that it changes the connection strengths in the brain, prodding your brainwaves into healthier patterns.  In practicality, it\’s lowered my anxiety levels and raised my overall mood climate.  It\’s also made it possible for me to smile for cameras, at babies, and just in general, which doesn\’t sound important until you recognize how often people smile at each other.  
  • Supplements- multivitamins are only the beginning here.  Vitamin D, magnesium, zinc, iron, time-melatonin, CoQ10, and N-acetyl cysteine (NAC) are the rest.  The vitamin/mineral sounding ones are mainly because I was deficient in them, and the melatonin is to help me sleep, but the NAC is to help detoxify my system from mold and… whatever else is in my house that\’s messing up my mental state.  There\’s something.  
  • Chiropractic care- my neck had been trying to be ramrod straight, and it was causing tension headaches and bad moods.  I\’m tapering off this particular care, because my neck now has its proper curve and I\’ve acquired proper pillows for supporting it better.  
  • Specialized Products- Mixed nut butter instead of peanut butter, a specialized electrolyte powder instead of gatorade, almond milk instead of cow\’s milk, aluminum-free deodorant, extremely gentle shampoo, and many others.  

Why Me?

Well, first and foremost, because I\’ve lived this.  I\’m autistic.  There\’s no one better qualified to discuss what it\’s like to be autistic, than an autistic person.  I know the subject in a way professionals never will.  I have firsthand experience to most parents\’ secondhand experience.  It\’s not always possible to get a clear and understandable answer on a subject from an autistic person, for various reasons… But because I\’m verbal, I can often give one.  
Second, because I have the mind and the background for the work.  I went to college for psychology, and earned my degree.  But in truth, I started studying people and systems over a decade before I attained that honor.  I knew, from a fairly young age, that I was different and didn\’t fit in.  But I had no idea why, so I set about learning what I didn\’t understand.  I was reasonably successful, considering I was trying to learn an entire curriculum\’s worth of missing information.  
Even with all that, though, I recognize my learning is never going to be over.  There\’s always new therapies being developed, and since I never had an IEP or any kind of supports in school, I missed a lot of the essential \”growing up autistic experiences.\”  I read new research and books on autism regularly, and attend a parent support group to help keep abreast of the challenges facing families with autistic people.  
Last, and most importantly, because I care.  As an undiagnosed autistic person, I suffered a great deal for lack of knowing what was going on, and why I was different.  As much as possible, I\’d like to help parents and fellow autistic people avoid that needless suffering.  Answers and help are out there.  As much as possible, I want to be part of that.  Educating people and humanizing the condition seems to me like one of the best things I can be doing right now.  
So, here I am.  Let me know if you have any questions, would like to hire an autism presenter, or if you have book recommendations.  

Legwork and Life, week of 1/2/19

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from the New Year, where I\’m hopeful about the coming 365 days.  2018 wasn\’t an entirely bad year, but it was very trying.  I attended two rounds of government research panels, went house-hunting with my spouse, successfully found and bought a home, and traveled for Thanksgiving.  There were plenty of not-quite-as-lifeshattering events as well, naturally.  While every life has to include some excitement, I\’m hoping this coming year will be slightly less so.  


I\’ll do a proper look into my goals from last year at a later point (I refuse to call them resolutions, since people tend to give up on those super-quickly if they don\’t succeed).  For now, though: the holidays were quite draining for not involving much travel.  The most we did travel-wise was drive to the other side of the state to see my uncle.  That\’s about 6 hours round trip, rather than the 28ish we\’ll be traveling for Christmas 2019. 

I think maybe it\’s because I got myself into a tizzy about presents this year, both in October and in December.  I got started earlier, which was good, but didn\’t get a few people\’s gifts figured out until nearly the last minute.  Which was not so great.  I can do better this year.  I think.  I hope.  I have the organizational documents from last year, anyway. 

The New Year\’s Eve party went pretty well.  I think we overbought on snacks a bit, but the small group of friends we invited seemed happy enough with our offerings.  We made Chris\’ family New Year\’s punch, which was a favorite.  Still got a good bit of that left, so I\’ll probably be drinking it for the rest of the week in addition to my usual massive glass of water. 

If anyone\’s looking for a good party game, I can now highly recommend both Jackbox Party Pack 4 and 5.  Some of our friends brought their console and copies of them.  Both games are for various consoles, and I think I\’ll have to pick them up soonish.  They feature interactive games you use your smartphone/device to play.  The game is hosted on a TV or computer screen or whichever, and everyone pulls out their phones or laptops to enter their answers or ideas.

So, the most fun game to describe might be Patently Stupid, where the game prompts you to creatively solve a funny problem people might have.  You might fill in \”cheese curds\” for \”I keep finding _____ on my doorstep.\”  Your finished problem is then given to a random other person in the group, who then has to come up with an invention to solve this problem.  They draw it on a simulated napkin, give it a name, and give it a tagline. 

The game then has each player present their idea, using the picture, name, and tagline.  Your imagination is the limit, and your drawing skills don\’t matter terribly much (seriously, I draw like an untalented 3rd grader, and it was fine).  I might, for example, decide a porch vacuuming system would be a good way to solve this problem.  So I might draw a handheld vacuum head suspended over a porch.  I could title it \”Porch Vac\” and give it the tagline, \”Problems suck, but our vacuum will help!\”  When it came time to present, I could say something about having a sorting system for dead leaves, cheese curds, packages, etc. 

Once everyone has presented, players designate \”money\” towards the ideas they like best, which gets you your score for that round.  It\’s a pretty cool idea, in my opinion, and easily repeatable with lots of different people.  

Legwork and Life, week of 12/26/18

Merry Christmas (or appropriate seasonal greetings for your religious/ethnic/personal beliefs)!  And Happy New Year in a few days.

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from the day after Christmas, where I am quite tired and probably actually still sleeping at the moment this will go live.  Normally I\’d have been sleeping in the last few days, but between church services, my spouse being on vacation, and taking care of a pet bird for some friends, I\’ve been off my usual schedule quite thoroughly.  


That fact has sadly not helped my life-juggling.  It\’s appropriate that this week\’s research review was on depression and online tools to help with it, because my tendency to get depressed near Christmas hit me pretty hard on Christmas Eve, and had been dragging on me all of last week.  

I\’d kind of hoped I was done with being depressed on/near Christmas.  It had actually been a few years since I was really depressed at this time of year.  I guess with all the hustle and bustle and anxiety about presents and such, I relapsed a bit.  Between ages… I dunno, 10? and like 24 or so, I was always depressed around Christmas.  Whether that was because my depression was untreated, or because of all the changes in routine around the holidays, or just because I deeply resent people expecting me to be cheerful around Christmas when I\’m not usually capable of it, and it\’s even less socially acceptable to not be happy at Christmas… the reason is anyone\’s guess.  

Anyway, my misery on Christmas Eve aside, Christmas Day was pretty nice.  I still didn\’t get to sleep in, but the first meal of the day was fancy brunch with my family.  There were all sorts of fun options, like mini Belgian waffles, fresh homemade whipped cream, an omelet bar, various fancy cheeses, roast duck/pork/beef, fresh fruits, and of course various fancy desserts.  I do like food, so good food is often the more predictable and reliable way to cheer me up.  

Presents this year came in two batches: from Chris\’ side of the family and from my side of the family.  I feel a mite childish about it, but it did me good to see the pile of boxes and gift bags sent by Chris\’ family.  We opened those on Christmas Eve after I was done being a miserable lump, after which we took various silly pictures in hopes of amusing my mother-in-law, who likes to have photographic evidence of family occasions.

The ones from my side of the family were much less impromptu, with an actual family gathering at my parents\’ place after the brunch.  My dad put on his traditional Santa hat and distributed presents one at a time, as is the family tradition.  That took a good while, because there were a surprisingly large number of presents.  I like my family, so it was time well spent.

I\’m not going to list out everything Chris and I got, but I will say the Most Unusual Present award goes to one of my aunts, who combined her love of knitting with my love of chainmail and made a pair of very singular (and warm!) cuffs.  These are remarkable (besides being what they are) in that despite that they\’re literally laced with metal, they are not pokey nor do they strip the warmth from your hands like chainmail does in winter.

Blue, of course.  My aunt knows me.  I really want a full long-sleeved shirt and leggings of something like this, but the amount of work that would entail would be absolutely insane.  

Other notable (oddity-type) mentions include a Pokemon-themed cookbook, a combination lightbulb base/USB charger, and a long-legged tablet stand for use while in bed.  These were in addition to things I\’d asked for on my wishlist and other less weird but still useful gifts.

I tend to be exceedingly ultra-practical for most of the stuff on my wishlist, asking for things like quality socks, electric toothbrush heads, household utilities, music CDs, and small consumable items.  These are things I really need or would use quite a bit, which is why they\’re on there.  So while I\’m always happy to receive things from that list, it\’s interesting to see what things people think should be in my life.  I have at least one relative that flatly refuses to buy things off wishlists.

Anyway.  All in all, the holiday season balanced out fairly well.  It\’s not quite over; we\’ll go to see my dad\’s brother (my uncle) on the other side of the state in a few days.  So I guess that\’ll be Christmas part 3.  Still, not a bad way to end a year, I think.

Hope your holiday season was good as well.  

Legwork and Life, week of 12/19/18

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from my house, where Christmas is stalking me.  I\’ve been trying to keep a bit more organized this year compared to years prior, but I dunno if I\’m really succeeding.  This year, to be fair, was a bit more complicated due to actually decorating slightly for the holiday.  



Those strings of lights actually gave me a very minor electrical burn, because I managed to break one of the bulbs while I was trying to get the lights up.  So that was fun.  But the end result is kind of pretty, so I\’ll take it.  (Also, if anyone is confused: the lights are blue because my favorite color is blue, and therefore many things that I own are blue.)

I\’m concentrating remarkably poorly this week.  Having the vent in the fireplace open seems to help, but it hasn\’t stopped the first part of this week from being the least industrious I\’ve ever been at working on this blog or really getting anything done at all.  It really makes me feel bad.  I have ideas graphed out on an organizational website for things to write about, but when I sit down to write, I just… can\’t seem to focus long enough to put thoughts together.  

This particular section, Legwork and Life, was even a struggle to manage, and it\’s the easiest of them all, just summarizing what happened last week and anything notable that might be useful to parents or other people.  I have no idea what\’s wrong with me, but clearly something is.  And it\’s not likely to be mold this time, we checked for that. 

All of this is to say, I guess, that even though I\’m highly verbal and generally handle my life well, I still have bad days and bad whole weeks, and couldn\’t tell you why.  So if you\’re a parent, and your kid is just… acting poorly or whatever for no apparent reason… maybe it\’s whatever\’s screwing me up.  Or something like it. 

I feel bad, more under-rested than usual (I\’m yawning much more often than I should be), and fuzzy-headed.  And it\’s probably not mold.  That\’s about all I, a highly verbal and highly reflective autistic adult, can tell you.  No wonder parents have such a hard time finding out how to improve their kids\’ lives.  

Legwork and Life, week of 12/12/18

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from my house, which has been thoroughly inspected for visible mold, and no luck.  My mother (who is very sensitive to mold) volunteered some of her time to sniff around the house in hopes of finding the mold or other environmental factor I was complaining about last week.  Nothing smelled off to her, which is good because it probably means there isn\’t any mold.  But it\’s bad, too, because it leaves a giant question mark for why I\’m feeling off.  

Fortunately, that\’s what my doctor is for.  Her suggestions for other factors included investing in an air purifier, getting allergy tests done (to see if I\’m allergic to pollen, pet dander, dust, etc), and surprisingly, moving the wireless router to another room.  

I\’m still getting the specifics on the lattermost idea, but it\’s probably worth trying any or all of these.  We already have an air purifier, which I\’ve set up to point roughly over my shoulder.  I should therefore be breathing mostly purified air.  I have no idea if the filter inside the air purifier is a HEPA filter, though, so it\’s uncertain how much good this will do me.  

The allergy tests are something I\’ve been meaning to have done anyway.  We were thinking about adopting a dog or a cat or something, but before we do that, I want to be sure I\’m not allergic.  It\’d be terrible to adopt a critter and then find out that although we just vowed to take care of it for the rest of its life, I actually can\’t be around it without compromising my health.  Finding out whether I\’m allergic to dust, like my mother is, would also be valuable.  
I\’m not 100% sure what to do with the router situation.  I can definitely put it on a timer, so it turns off at night and back on in the morning without needing to worry about it.  But there\’s only so many places to put the router, and I don\’t want to move it nearer the bedroom.  But I also still need the wireless signal to be accessible in the house.  It\’s a frustrating situation.  
Hopefully my spouse and I can figure something out soonish, and get measurable results.  If I could feel better every day, I\’d really like to.  

Legwork and Life, week of 11/5/18

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from my house, where the cold weather has finally set in properly and the pond out back is starting to freeze in pretty patterns.  


I\’m pretty sure if I tried walking on this, my foot would immediately sink through.  Still looks nice!

It\’s taking longer to recover from the trip to CT than I was hoping.  I\’m not sure if that\’s a function of there being mold in the house somewhere, or the fact that I immediately tried to hop back into almost every weekly event, or what.  It\’s clearly not blameable on the algae outside, though.  I\’m kind of loathe to go on a witch-hunt through my house for mold, but if there\’s been a lesson in the last year or so, it\’s, \”Are you feeling bad suddenly?  It\’s probably mold or some kind of environmental factor!\”

Maybe my biggest issue with doing these mold hunts is that it\’s never really a simple question of \”well, best check the refrigerator.\”  It might be the refrigerator, of course.  It might be the shower (which did have mold in it when we bought it).  It might be the sump pump, which has standing water in it at all times (but I was told didn\’t have mold when they inspected it).  Or it might be something on the kitchen counter, because sometimes that just happens.  Other possible places include faulty window sealants, the air conditioning, and the carpet. 

It\’s overwhelming and frustrating to even consider, because I don\’t necessarily know what I\’m looking for, or even if I\’ll recognize it when I find it.  There are something like 100,000 different types of mold, some of them much more subtle than others.  When I\’m already feeling bad or foggy-headed, I\’m really not interested in taking on a project of that potential magnitude.  

In theory, I suppose this is where I should be calling in my spouse.  In practicality, doing that feels like I\’m bothering him and wasting his limited free time on what might well be a fruitless search.  So mainly, I just tough it out until I can\’t any more or the source is found accidentally.  (Why yes, this is very stupid and not at all advised, thanks for noticing!)

Legwork and Life, week of 11/28/18

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from my house, where I have safely returned after the 12+ hour drive from my inlaws\’ house in Connecticut.  Thanksgiving went really well, to the point where I think it\’s in the running for \”best inlaw visit ever.\”  The other major contender for that title would be my very first visit, where I was fairly cheerful because I was running on the \”new relationship\” high.  

I dunno if \”cheerful\” describes my demeanor this time, but my general attitude reminded me of my brother a decade back, save that perhaps I was a mite more talkative.  I\’m not sure if that\’s a genetic thing or what, because I wasn\’t trying to replicate his particular combination of polite, thoughtful, and caring.  It\’s not the first time I\’ve noticed the similarities on my better days, so perhaps this is how I would normally act if I wasn\’t slightly depressed most days.  

Regardless, I\’m very pleased that I handled the transitions between home, Washington DC, and Connecticut so well.  My supplements arriving in time definitely contributed to the success, I\’m sure.  The visit did burn through most of my blog buffer, which is somewhat to be expected, but I don\’t feel like the situation is dire or impossible.  I simply need to make sure to spend a lot of time in the next few weeks rebuilding it, before the December holidays strike.  

The trip back from CT was probably one of the nicest such trips I\’ve ever made. There\’s only so pleasant a 12+ hour trip can be, but having a second driver to switch off with helps.  Music helps.  This year we actually added a third kind of boredom-reducer, a podcast, to the mix.  It wasn\’t my usual comedy joke advice podcast that I am still working through (it\’s been at least half a year, probably more, of me just listening to this one podcast to try to catch up).  

Instead, it was a theatrical Dungeons and Dragons (D&D) game podcast.  Basically, a GM runs a D&D campaign, records it, and then adds sound effects and music and such to make the game more immersive and entertaining to listen to.  Since my spouse and I both have a background in D&D, it was just fun to hear all the creative ideas the players and dungeon master came up with.  Since D&D is ultimately a cooperative storytelling experience, it\’s really cool to see what other people dream up, and it can inspire ideas of your own.  

I\’m still pretty done with personally playing D&D, but I don\’t mind hearing about others\’ fun experiences, and this is kind of an exaggerated version of that.  It\’s also something my spouse and I can do together, which he values very much.  

Legwork and Life, week of 11/21/18

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from Connecticut, where my inlaws live, and where I\’m currently visiting to celebrate Thanksgiving with them.  This year, Chris\’ family gets us for Thanksgiving, and my family gets us for Christmas.  Next year it\’ll be the opposite.

I survived the first half of my trip!  The expedition to Washington DC for the Autism Research program was a success.  They might even invite me back next year, it remains to be seen.  I may have slightly made an ass of myself last year (I was less than impressed with all the genetics and mouse models when autistic people are literally dying from lack of support services), but not as much this year.  I suppose that probably bodes well for the future.  I can only be called to serve so many times, but they do seem to appreciate having me around.

Due to nondisclosure forms, I don\’t get to talk about what I reviewed, but I can say I was a lot happier with this year\’s crop of applications than I was with last year\’s.  It was also cool to see some of the same scientists and other consumer reviewers as last year, which was helpful because it\’s really stressful to get shoved into a room with a bunch of strangers and be expected to interact with them for hours.  They do make things easier by giving everyone nametags, but even so.  I definitely didn\’t remember pretty much anyone\’s name, but due to the nametags, that didn\’t matter so much.

Now I get to work on surviving part 2 of my trip, which includes the added bonus difficulty of not having my supplements every day.  I was an enormous derp and miscounted how many days the trip would be.  So I\’m going to be having my pills every other day, and hoping the ones I ordered to be shipped here will come in time.  \”Less than ideal\” is definitely an understatement.

It should be okay… the pills should arrive by the end of today at some point.  I just really want them sooner because the house I\’m staying in is quite old by US standards (nearly 250 years old), and thus quite dusty and possibly molding or mildewing somewhere not easily accessible to humans.  I get fuzzy-headed, grouchy, sad, and anxious when I\’m here.  The pills offset that a great deal, though not entirely.

I do still have the generous offerings Chris\’ family provides to help offset the house as well: an air purifier, a space heater to help with the open window in the room, an electric blanket, and four of those weird Himalayan salt lamps.  I have absolutely no idea if the lattermost do anything, but the light they shed is nice, so I\’m not complaining.  I might get one myself and use it as a nightlight, regardless of any claimed positive health effects.  The light they shed is orangeish pink, rather than any kind of blue or white. 

Anyway, wish me luck with surviving Thanksgiving!  

Legwork and Life, week of 11/14/18

This is Legwork and Life, where I track the legwork and opportunities in my career as an autistic advocate, and also describe parts of my adult autistic life, including my perspectives on everyday problems and situations.

Hello from somewhere near Chicago, probably still over a thousand feet up.  At the time this posts, I\’ll likely be on an airplane and just about done with the first leg of my flight to Washington DC.  I\’ll be taking a flight less than an hour afterwards, which will take me the rest of the way to not-quite-DC-proper for the Autism Research Program conference.

In preparation for all this, I spent the last week or so stressing over research applications and getting intensely annoyed by the scientific writing style.  I\’ve been accused of swallowing a dictionary, or at least reading them for fun (untrue on both counts), but I have nothing on the people that write these research papers and applications.

I complained about this last year, with a lot more heat and frustration than I feel this year…  but that might only be because there were fewer applications to review this year, and one of the applications was actually readable.  Like, someone actually took the time to make sure the application wasn\’t full of jargon and didn\’t use run-on sentences.  I was impressed, so I made sure to say so.

I don\’t get to talk about the contents of the applications I read, but I will say that this year I was assigned to a category that\’s much less theoretical than last year\’s.  This category deals more with things like transition programs and concrete research studies on human subjects.  So, far fewer mouse models.  Which was definitely better for my sanity.  I\’ll probably be much less sharp-tongued this year as a result, which is definitely a plus.

The other preparation I did for the trip is a lot more normal: packing.  When my family would go on trips, my mother would always make and check off important items that needed to be handled before we locked up the house and left.  I\’m not quite as organized as my mother, but I did cobble together a packing list years ago.  So yesterday I dug it out and updated it some, as well as putting it on Google Drive for easy accessibility.

There\’s the usual stuff, like clothes, on there, but there\’s also things like \”power strip,\” \”bottle of NAC,\” and \”feminine products.\”  I take a power strip with me when I travel, especially if it\’s by airplane, because you never know when you\’re going to find yourself at a place with no free spots in a power outlet.  The bottle of NAC (N-Acetyl Cysteine) is in addition to the NAC in my regular pills.  I react rather poorly to mold, mildew, etc, so it\’s wise to bring extra with me in case of less-than-perfectly-sanitary environments.

Packing my things has reminded me of how many specialized products I use these days.  My deodorant is aluminum-free.  My shampoo is color-safe, which means it uses much weaker cleaning chemicals than most shampoos.  My toothpaste has baking soda in it.  Even my feminine products are odd: a menstrual cup (rather than tampons) and cloth pads.  I use pretty specific lip balms and lotions as well.  That\’s not even touching my food, which tends to be vegetarian anytime I leave home, and my supplements and vitamins, which have to be very specific brands due to the lack of regulation on that market.

All this specialization makes me kind of sad, because it severely limits my options when shopping.  I made all these choices for reasons, though.  Some of them for health reasons (supplements, deodorant), some for moral reasons (feminine products, vegetarian diet), and some simply for pragmatic reasons (shampoo, toothpaste).

Speaking of specialization, I started on a new book series recently, which I\’ll probably finish during the travel tomorrow.  It\’s called Chaos Seeds, and it seems to be self-published.  It\’s a very specific type of fantasy I hadn\’t heard of until recently, called litRPG.  It\’s what you get if you blend MMORPG (massively multiplayer online role playing game) rules, fantastical worlds, and heroes\’ journeys together.  I found the style extremely difficult to accustom myself to (and the writing improves over time), but I think I\’ve mostly got a handle on it now.  The author of the series is African-American, which is pretty cool.

Wish me luck with the trip!  After I\’m done in DC, it\’s off to the inlaws\’ for Thanksgiving, where I\’ll hopefully be able to relax some and eat good food before going home again.